In addition to the many roles that family caregivers take on, they also add worrier to the list. Experts agree that while this is typical, it is not doing anyone any good to feel guilty.
Barry J. Jacobs, PsyD, is the author of “The Emotional Survival Guide for Caregivers: Looking After Yourself and Your Family While Helping an Aging Parent.” He has encountered many caregivers who are stressed from the self-imposed guilt they are experiencing.
“There are many sources for caregiver guilt, but most of them come down to not meeting their own or others’ expectations of the care they will provide,” he said in an interview. “Part of this is due to the fact that most caregivers start with an unrealistic idea of what caregiving entails and therefore set the bar too high for themselves. When they eventually tire or feel overwhelmed, then they beat themselves up when they don’t meet those initial expectations.”
In order to avoid being a guilt-ridden caregiver—or to stop being one—Dr. Jacobs offers these tips:
Dr. Jacobs, a member of the AARP Caregiving Advisory Panel, states that 1 in 5 caregivers say they are not stressed by caregiving, “the other 80% are.” And, “Most of them will experience some degree of guilt.”
Chances are that caregivers aren’t just feeling guilty about their caregiving abilities, but also other areas of their lives. As they devote more time to caring for an elderly parent or disabled sibling or child, they are doing less at work or spending less time with friends.
“It is common for caregivers to feel that they are spread so thin that they are not doing a good enough job with any of their responsibilities,” Dr. Jacobs said. “They feel constantly guilty.”
Hiring a professional caregiver to step in—even for just a few hours a week—can lead to more guilt, though it can also reduce stress and alleviate guilt in other areas of one’s life.
To get control of our guilt and stress from caregiving, check with your local Area Agency on Aging, the Alzheimer’s Association, or your local church for support groups for caregivers.
Any kind of caregiving is going to require coordinating with other people and entities, such as doctors, therapists, insurance, maybe other family members or non-medical caregivers. This is called coordinated care.
We have created a library of support for family caregivers who may find themselves overwhelmed or confused as the symptoms of Alzheimer's disease.
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