Helen Osborne, OTR/L is the founder of Health Literacy Month in October, an international campaign to raise awareness about the importance of understandable health information.
She is president of Health Literacy Consulting and the producer and host of the Health Literacy Out Loud podcast series.
A: The definition of health literacy is evolving. What is getting the most focus now is the alignment between the demands and complexities of health care systems with the abilities and needs of people receiving the message.
Listen to some of my podcasts at Health Literacy Out Loud to learn about other health literacy issues—such as hearing impairment—and the many ways that providers work to improve communications.
There are so many ways! For caregivers who are bringing someone to a doctor’s appointment, establish roles ahead of time. Ask the client or patient, “Will it be okay for me to ask questions?” and “Do you want me to take notes?” A caregiver can help a patient or client write down questions before they visit the doctor, keep a log of any issues to share with the doctor, and decide what their role is before, during, and after a doctor visit.
My mother is a great example here. She told me that she was brought up with the belief that it’s rude to ask a person in authority questions. Since I was going to the doctor appointments with her I asked her if it would be okay for me to ask the doctor questions and she said, “Of course, dear!”
The clinician should take the lead in making sure that the client or patient is understanding their instructions. For example, the doctor might say, “We just talked about a high fiber diet. Can you tell me what you will be buying at the grocery store?”
I first heard the term in 1995 when I was working as an Occupational Therapist and back then the statistic was that more than half of adults struggle to understand written health information. I was an early adopter and started Health Literacy Month in 1999.
(According to the National Assessment of Adult Literacy, only 12 % of adults have proficient health literacy and 14 % of adults have below basic health literacy. The United States Department of Health and Human Services notes that “low literacy has been linked to poor health outcomes such as higher rates of hospitalization and less frequent use of preventive services…both of these outcomes are associated with higher healthcare costs.”)
The theme this year is “Be a Health Literacy Hero.” Health Literacy Heroes are individuals or organizations that take action towards solving health literacy problems in their communities. On my website we have listed some of these heroes, such as a clinic in Kansas City that has created a training program for staffers to be able to better communicate with the uninsured and underinsured population they serve. I’ve provided a checklist on the website to help these advocates stay on track. There are ideas for events and partnering with other organizations in my handbook, which is also available on the website.
Caregiving is about more than just one person fulfilling a list of a tasks; it’s about human relationships and connection.
Home care is not just one thing, but instead an umbrella term under which there are many types of care for many different types of needs and people. Learn about elder care, respite care, personal care, dementia care, and after-surgery care.
People who are living with developmental disabilities often need a professional caregiver in addition to family member support.